I really don’t know how to answer it without worrying people.
I go to bed terrified that I will be woken up in the middle of the night, having a dystonic seizure just from trying to get into a comfortable position. I’m afraid that if I roll out of bed, putting my feet to the floor a seizure will start.
I, who used to be able to walk for hours, can barely walk for 15 minutes. When I walk in public or in the house, I am unsteady on my feet.
I used to be able to heft Canon body, with the 100-400mm lens on all day photowalks. Now, I can barely lift the rig for 5 minutes
Cooking? I can get a bowl of cereal ready, using to hands like a 10 year old. Boiling water, using sharp knives around someone who could have a seizure?
I feel useless. I still get to do the ‘dirty jobs’ (the cats litter boxes) and can manage laundry if hung up on inside rack.
The medications: The hardest thing is staying awake. I feel as if I’m in a perpetual drowse.
Depressed? Yeah.. you could say that.