Author Archives: Sandra

About Sandra

Passenger on a blue marble, circling yellow star. Dancer, astronomer, technogeek, coffee lover, pagan, photographer.. not necessarily in this order.

Here’s hoping…

I have an appointment to see the neurologist tomorrow morning, and Mr S and Doctor H have said he will want to witness one of the episodes/seizures. I’ve been slowly reducing the dosage of my medications. Today, I have only … Continue reading

Posted in Health | Tagged , , | Leave a comment

Excelsior. RIP Stan Lee

Stan Lee, Marvel Comics’ Real-Life Superhero, Dies at 95 The feisty writer, editor and publisher was responsible for such iconic characters as Spider-Man, the X-Men, Thor, Iron Man, Black Panther and the Fantastic Four — ’nuff said. Stan Lee, the … Continue reading

Posted in Obit | Tagged | Leave a comment

Just finished up home visit from Neurocare services

  We now have a proper name for what is wrong: Functional Neurological Disorder.  It’s not all in my head, I’m not making it up. FDN is as common as MS and Parkinson’s with similar levels of disability and impairments … Continue reading

Posted in Health | Tagged , , | Leave a comment

People keep asking me how I feel

I really don’t know how to answer it without worrying people. I go to bed terrified that I will be woken up in the middle of the night, having a dystonic seizure just from trying to get into a comfortable … Continue reading

Posted in Health | Tagged , , | Leave a comment

Where to begin

After a week of the proscribed medications, I was still having the dystonia seizures. I can’t describe how it feels to have your body trying to force itself into geometrical angles where there shouldn’t be. I did what I was … Continue reading

Posted in Health | Tagged , , | Leave a comment

Visit to the GP.

After a lengthy discussion, and some pointed questions, a course of action has been set up.As it’s not the brain, but nerve pain, I don’t have to ditch other medication, but it will be shelved for a while. For now, … Continue reading

Posted in Health | Tagged , , , , | Leave a comment

Dear Fuq Up Fairy, find someone else to bother, please?

About two weeks ago, I woke up with what I thought was just a bad cramp/charley horse, from my right foot, straight up to my right hand. The pain was intense. My foot arced and the toes curled, and my … Continue reading

Posted in Health | Tagged , , | Leave a comment